Here’s a survey I’ve been working on for 3 years. I began working on it when I first realized that there were overlapping symptoms between autoimmune disorders. It takes about 25 minutes to complete, and I would really appreciate people filling it in. I’m trying to get as much data as possible so I can work on (hopefully extremely useful) scientific paper. I think people will also find the questions interesting.

I’ll be looking at how certain symptoms clump (what’s most common in populations, how many people are suffering from these things), and of course there’s a section on how you eat, and personality (taken from dad’s personality questionnaires).

Once enough data has been entered I’ll start working on seeing if there are any patterns. I’m hoping this will help thousands of people.

No personal information will be collected.

SURVEY LINK

41 Comments

  1. Jeremy Clarke on June 10, 2018 at 8:37 pm

    under prescription meds, maybe you want to include ‘insulin’, and under ‘symptoms’ have something to indicate diabetes..?
    insulin dependent diabetes is an autoimmune disease.. maybe this is not of interest in your research.

    • Mikhaila on June 11, 2018 at 7:20 am

      Ah good idea

      • Fernando on July 7, 2018 at 2:04 pm

        Second in the diabetes one, i put it in others

  2. Daniel J on June 10, 2018 at 8:44 pm

    Filling in now! Congrats on releasing this.

    A double up:
    Q83. I feel the need to nap.
    Q84. I feel the need to nap.

    Then Q85 the scale is reversed. Don’t know if this is intentional.
    x

    • Daniel J on June 10, 2018 at 8:45 pm

      Q86. I suffer from depression.
      Q264. I suffer from depression.

      I’ll stop posting these as the numbering goes all over the place after that. 🙂

  3. Kenn Macd on June 10, 2018 at 8:46 pm

    question 266 (after question 69) doesn’t make sense to me
    Q264. I suffer from depression.
    Q265. I have the feeling of impending doom.
    Q266. Click to write the question text
    what is the question text?

  4. Kenn Macd on June 10, 2018 at 9:03 pm

    sorry. question 266 was after question 59. One of the questions had markers more appropriate to ages (eg 30 40 50…) rather than the usual 1, 2 ,3, 4, 5, …

  5. Jim kennedy on June 10, 2018 at 11:00 pm

    I didn’t like the sliders for the 5 scale questions. Standard radio buttons would be good
    Maybe for choose one of N of disease type include none as a choice. Then it is clear if I have it or not. I ignored the numbering. (Question numbers)

  6. Xavier on June 11, 2018 at 1:15 am

    I can’t answer “strongly disagree on some questions” starting from “I blister easily from the sun”. When I click on the next button I get the error message “Please answer this question.”

    I started a carnivore diet one week ago with the hope of fixing a little persistant eczema and mainly depression, anxiety and this kind of “chronic laziness” associated with my depression. Thank you a lot for your work Mikhaila and hello from France.

    • Xavier on June 11, 2018 at 1:47 am

      Also, I want to warn you that the questions about the diet will easily be biased because people coming from your blog are more likely to have an unusual diet or to have changed it recently.

      • Mikhaila on June 11, 2018 at 7:20 am

        Yeah definitely, but I’m going to get a lot of people to fill it out. Dad’s sharing it with his social media too.

    • Tom on June 11, 2018 at 5:36 am

      You’ll have to press the slider even though you’re not moving it to set it to zero.

  7. Clemens on June 11, 2018 at 3:06 am

    Hi Mikhaila, I have the same problems with the questionnaire as people above have mentioned. I stopped at Q264 because I can’t click 0,4,5,6.
    Please give me a nudge when it is fixed.
    Kind regards and thank you very much for sharing your experiences!
    Greetings and best wishes from Hamburg, Germany

  8. Lynn on June 11, 2018 at 8:28 am

    Hello, I just wanted to mention that I answered the questionaire based on how I feel today. I’ve been on a keto diet for almost a year which cleared up my recurrent ear infections and dry skin problems. Many years ago I had tonsilitis, pneumonia, strep throat and the other one, but you were asking recently, so I answered no.
    I’m finishing up a few favorite staples and in a couple days I’m going to start the elimination/carnivore diet to see if it clears up my psoriasis symptoms. Thank you for taking on this research and for the help you’ve given already.

  9. Jori on June 11, 2018 at 12:51 pm

    Hi. I filled out the questionnaire, but understood too late (typed the send in button too quick) that I had to move the button to get the 0 (strongly disagree/agree) choice, so in the first part of it I typed 1 (disagree/agree) when I should have typed 0 just to get by. Hope this doesn’t mess up your results too much, I guess the difference between strongly disagree and disagree isn’t that big, nevertheless, I would have liked I got it right.

    • Kenn Macd on June 11, 2018 at 10:00 pm

      Yeah, I did a similar thing with some of the answers, I don’t know if it will make a difference because the questions seem to require a yes or no answer, not a strongly disagree -> strongly agree response, so I don’t know if there will be a huge difference between strongly disagree and mostly disagree.

  10. Matthew E on June 12, 2018 at 1:34 am

    “I have another condition that affects my eyes.” needs a “(SCALE IS REVERSED)” on it! (Or un-reverse the scale!)

  11. Eric on June 12, 2018 at 5:35 am

    Check if blood type affect diet. Also check benefits of ozone theraphy.
    Atleast benefits of ozonated olive oils.
    Love and light of wisdom to us all. *smile*
    Regards
    Eric de Wit from Finland

  12. dailykenn on June 12, 2018 at 11:16 pm

    Questions seem as if they focus on Aspergers or autism.
    BTW – I’ve lost about 80 lbs on Keto/fasting regime in 11 months.

  13. Brian Crowley on June 13, 2018 at 5:33 am

    I think the scales for:
    I have the feeling of impending doom,
    Sometimes it feels like I forget to breathe &
    I was overweight as a child, are reversed.

  14. Debbie Nichols on June 13, 2018 at 10:22 pm

    When I clicked to open the survey it did not open. I would like to complete it.

    Thank you and very best wishes.

    • Elisabeth on June 14, 2018 at 7:44 am

      Same here. I wanted to fill it in but it seems like the link isn’t working. Or is it not available anymore?
      Thank you Mikhaila, all the best for you and the work you’re doing!

      • Mikhaila on June 14, 2018 at 9:28 am

        It better be available. I upgraded the plan and for some reason I can’t access it. As soon as the company opens they’re calling me. Seriously unimpressed.

  15. Jess S. from Sask, Canada on June 14, 2018 at 12:37 pm

    Hey- completed the survey but it ended up taking about an hour- just so people are aware.

  16. Derek P on June 14, 2018 at 3:37 pm

    Hey Mikhaila,

    Just filled the survey out. Will you be posting some results on the site here?

    Also, do you (or others) have a recommendation for the best way to track diet and look for food sensitivities? Perhaps an app?

    All the best,
    Derek

  17. Leandro on June 15, 2018 at 12:54 am

    I finished! Hopefully you can find a utility to the survey. I send a greeting to you and your father from Argentina. I was able to keep my seborrheic dermatitis with meat under control, since I found that I am allergic to several foods. They saved my life!

  18. Havumäki on June 18, 2018 at 9:18 am

    Hi Mikhaila!

    I started this all-meat diet 10 days ago and I have not seen many benefits. In fact, there have been some complications. I’ve been eating only fatty beef and some salt, nothing else. I’d like to ask you a few questions because I still believe this will work because I’ve read so much good stuff about it. I would just like to hear your opinions if this is normal.

    I’ve noticed that the pain and tightness in my neck and the tightness of my muscles has eased, but that’s the only benefit. So in addition to that I’ve faced other symptoms that got worse. Oh and before this I used to eat a lot of fatty meat already.

    These issues got worse and are getting worse all the time:

    Skin condition (small rashes, dry), sleep, racing heart / hard to relax, diarrhea (only happened when I ate too much fat), fatigue, brain fog, irritability, feeling in general.

    Is this normal during the “transition” and if so, how long do you think it will last?
    Do you think histamine intolerance can be a thing here?

    I really hope this will work, otherwise I’m quite out of options as I’ve tried so many different things. Help from anyone appreciated!

    Thanks!

    • Mikhaila on June 18, 2018 at 9:19 am

      Yes that’s totally normal. The first three weeks can suck. Days 8-16 can be the worst for cravings and weird symptoms. Give it a try for at least 3 more weeks and see how you feel. I wouldn’t worry about histamine intolerance until you’ve tried this for a solid month. You’re right in the middle of the transition period right now, keep at it!

      • Havumäki on June 18, 2018 at 4:11 pm

        Aight I will stick to it, hopefully this is the solution. Thanks for the reply, it’s most helpful and encouraging 🙂

  19. Robin on June 23, 2018 at 4:25 am

    Hi Mikhaila, thanks for doing all this.
    Im trying to fill in the survey and noticed you didn’t include methylphenidate or similar drugs at “prescription medication”. Though I thought that ADHD probably fits in very well with all the things you are trying to figure out here.

    On that note, have you any reports on ADHD by people? I’m researching this a lot and the evidence seems to come up veeery slowly that maybe this is related to the gut a lot.

    Just a little thought 🙂

  20. Rom on June 25, 2018 at 3:53 pm

    Dear Mikhaeli and Jordan,

    I have a medical theory to connect many of the dots you describe, and I had the exact observations your dad described in an interview:

    The key is the overload and plugging of the Lymph system, basically the sewer system of the body.

    The lymph system runs parallel to the blood vessels and collects lymph fluid with waste from around the body. It transports it through the lymph vessels via lymph nodes to your tonsils where it is deposited in the back of your mouth. This fluid is generally clear (fluid in a blister).
    With inflammations your body white blood cells fight and get used which go together with the waste through the lymph system.

    If you overload the system for instance through a reaction to eating bread (like I have) the waste plugs the tonsils and they become enlarged:
    · Causing snoring by partially plugging the airways
    · Causing inflammation due to the presence of the gunk in your tonsils after a few days eating bread or other causes of plugging
    · The waste forms white/cream yellow lumps and become foul over time (1-2mm diameter) and contain a lot of sulphur compounds giving them a very bad smell, hence a bad breath. If you can overcome the gag reflex and squeeze them out, you feel better and they indeed smell awful. As a result you breath in these sulphur chemicals (m,ainly hydrogen sulphide) continuously in particular if you do little exercise the concentration is going to be high. This is likely to affect your brain function as a kind of poisoning.
    · The overload also accumulates in the lymph nodes inflaming them, causing enlarges lumps in various places over the body depending where the source of the inflammation is (Many lymph nodes in shoulder/groin front of torso and under clavicle)

    Of course the inability to get rid of waste severely impact your body.

    A TED talk about the function of sleep as waste removal is a key indicator to the link with lymph system. If the sewer is blocked the function of sleep in removing the waste is curtailed and your sleep isn’t refreshing. And could potentially lead to dementia/alzheimers as build up of waste.
    https://www.ted.com/talks/jeff_iliff_one_more_reason_to_get_a_good_night_s_sleep

    The plugging or curtailing of the lymph fluid system will reduce flow of such fluid and the renewal of those clear fluids in the body: Cerebral fluid in the waste the joint fluids, leading to inflammation, and inflammation is the brain is generally linked to mental issues, whereas inflammation in the joints is related to arthritis.
    Sources of the overload of the lymph system exist where the body is exposed to excessive White blood cell activity fighting invasions either by fungal or bacteria or due to food intolerances. The food intolerances will differ per person but wheat products or specifically product like break cakes etc. are often mentioned.

    I get a stuffy nose, inflated tonsils with white lumps and stuffed forehead if I eat (particularly factory) bread, and a tonsillitis if I continue to eat if for two days. So in my case bread seems to be a cause

    If I eat straight sugars (sweets/honey/sirop etc.) I get mild pain in my finger joints for a few hours

    I have fungal infection of my footsoles which might be fueled by sugars. If I soak them and scrape of the dead fungal white spongy skin , I feel and sleep better. I think the fungus lives on the interface of dead and living skin and is fueled by sugar. If I don’t scrape it I get itshy red ‘burning soles, often associated with diabetes. Also if I do not do that the lymph nodes in my groin becomes large making my legs very sluggish, as if waste cannot be taken away in the lymph system.

    Exercise
    There is a role for exercise in stimulating flow in the lymph system and clearing it to enable it to retake its function but without adjustments elsewhere it will clog up in hours. Vigorous exercise will stimulate flow to the interface of dead and living skin cleaning it of waste, and thereby reduce itching, in footsoles and elsewhere.

    Sleep
    A clearing of the lyph system to function properly allows sleep to be refreshing, you feel awake and are not tired and craving sugar and caffeine, which itself fuels candida and other issues
    So the resulting refreshing sleep, the higher resulting energy levels, lead to more moving and eating less and less cravings for high energy items like sugar and simple carbs.

    Diet,
    I think you have clearly worked out which diet result in a reduction of the load on the lymph system giving you the improvements and improvements
    I think the gut bacteria and various related issues can equally load the lymph system and cause this overload. I do not have this myself so cannot speak from first experience.

    Inflammatory diseases in general
    It is now medically proven that inflammatory diseases are present together in certain groups in the population (heart disease, diabeter, arthritis, alzheimers etc.)

    Summary
    So indeed the key is diet to reduce inflammatory reactions, refreshing sleep to reduce food cravings, exercise to help the lymph system function with more capacity and hence sleep better, and as a result have more energy to move and less need to eat sugar and carbs leading to weight loss. Overall reducing the inflammatory load and reducing the inflammatory diseases.

    Hope this helps you in your quest, I’m convinces that this is the cause of many diseases as described. And perhaps with this you can spread the word also into the medical community as because the lymph system is not well covered by one specialty and runs through all the medical specialties it doesn’t get much attention
    Rom

    • Brian Nave on July 7, 2018 at 5:18 pm

      Rom/ Mikhaila / Jordan- How much of auto immune issues might be caused by candida overgrowth? How is it that Brain fog and more symptoms for MS and Candida overgrowth are the same and know one talks about this connection!?? I was diagnosed with Multiple Sclerosis 2 years ago- when I was 42- I’m now in the best shape of my live as I am regularly working out, have gone alcohol, gluten, & dairy free for the last 9 weeks and have finally received some relief from the constant Brain-fog I’ve been dealing with for the last 20+ years likely…. Possibly i’m not out of it yet but the fog is starting to clear and it feels great. I think I will have to give this protocol a try very soon as there is nothing to lose and everything to gain!! Thank you for what you do!! Good luck to us all!

  21. Maria on June 28, 2018 at 5:49 pm

    I just filled in the survey, but made a mistake in my height (from Europe and not used to feet and inches) and put in 6 feet 5, but it should have been 5 feet 4. And realized the mistake too late. I’m sorry! I hope it don’t mess up the data.

    Blessings to you and your family. It is so heartwarming to hear how everything has improved for you!

  22. Liz on July 4, 2018 at 9:54 am

    I recommend adding to your survey a question about what we do eat and any intolerances or issues. I got very sick in my late 30’s and went to a naturopath who turned my health around. I had eaten a whole foods diet nearly my whole life. I can eat all the dairy and gluten I want, but potato, enriched grains, and cane sugar really mess me up badly. I had known cane sugar would trigger depression in me and avoided it for years, but the potato and enriching were the surprise problems. Later I was tested and found out I am homozygous for the MTHFR 677T mutation which explains the enriching problems.
    Because of what I have seen I find strange diets that benefit individual biology very interesting, I am glad carnivore diets are helping people.
    Also I think pure carnivores need to be eating organ meats for full animal nutrition. I have not seen this addressed her, but maybe I missed it looking around.

  23. robohobo2014 on July 4, 2018 at 9:11 pm

    I found the survey via your dad’s twitter and took a couple of weeks ago. I also just listened to him on Joe Rogan’s podcast/youtube about diet. I discovered your dad for various reasons some months ago and listen when I have time but the resonance has increased recently.

    I have been recently diagnosed with pulmonary fibrosis/grinder’s disease. I am an equipment engineer (robotics). I also have other issues that are life long.

    I really, really would like a short conversation is that suits you.

    Reach me at robohobo53atgmaildotcom then we can swap deeper contact info. Again if that suits you. The gmail is a throwaway email account.

    The Robohobo

  24. ruby on July 5, 2018 at 6:34 am

    Would love to fill in survey when it’s fixed I.e. scales allow you to choose zero. Ended up quitting

  25. Steven on July 6, 2018 at 8:37 am

    There were a couple of questions I had to pretty much guess. How much milk I drank before I was 6 and how many courses of antibiotics I’ve had. re antibiotics, I went for 5 I think but I haven’t had any for 18 years and that may be relevant.

  26. Sondra Rose on July 13, 2018 at 5:15 pm

    Mikhaila,
    I appreciate your intentions, but this survey will not get you any useful information. You don’t explicitly set the parameters (e.g. list only symptoms you had PRIOR to going Carnivore/eliminating plants.) Plus, there are just too many questions.

    I got half way through and stopped. Too many questions with reversed ranges, as well. People are going to mess up.

    Please consider taking down the survey and getting some expert help to make it problem-free, shorter and more useful.

    • Paul Fritzen on July 14, 2018 at 4:22 pm

      I’m not sure if you’re in the position to advise her, since you don’t seem to have any legitimate credentials and offer no proof for the efficacy of your advice. She’s been working on it for 3 years, seems like a pretty smart woman and certainly has done much research in the field, that along with her personal experience. So I trust her judgment a little more than yours.

  27. Vincent McC on July 21, 2018 at 7:39 am

    Hi,
    Your story is inspirational, I hope your health continues to improve.
    I just completed your survey, I was unpleasantly surprised at how many of the symptoms and issues I had. Very interesting and wide ranging questions, I hope it formulates well into successful conclusions for you. One of the symptoms that I have experienced for a long time is sinusitis and a constant low level of phlegm being coughed up. I thought it may be something else you add to your survey. I have recently (yesterday) moved to a meat only diet to see if I can solve some of my health issues, I have tried all sorts of things for years and nothing ever works. Fingers crossed.
    Best of luck,
    Vincent

  28. Lar on July 24, 2018 at 7:33 pm

    Perhaps you could add a question about AFIB in the future? Thanks for your efforts!

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