Lyme. Are You Kidding Me?

So on February 25th 2019, I had one and a half days of hoping all of my problems stemmed from some lifelong C. Diff problem I didn’t have symptoms for, and then I got the results back from my Lyme test.

Positive. Is my life a giant black comedy?

Chronic illnesses are very difficult to fix. You’re going to be wrong about things, you’re going to have your views completely changed multiple times. Keep going. I’m in remission, and that’s what’s important. It’s unbelievable really. I’m thrilled with my life.

But the underlying causes still haunt me.

  • Are they fixable?
  • Are humans just supposed to eat mainly meat?
  • Am I ever going to be less sensitive?
  • Does my Dad, Jordan, have the same thing wrong as I do?
  • Why do I get arthritis when I eat plants?
  • Why do I also get what happens to Jordan (mainly cognitive symptoms) if he doesn’t have lyme disease?
  • Why aren’t our symptoms exactly the same but very overlapping?
  • Why could I tolerate plants before the pregnancy but not after?
  • ETC. You get it. There are a lot of unanswered questions here.

I’m not going to stop searching. Every new piece of information is a step closer. So that’s where I am now, a step closer. This new diagnosis of Lyme Disease doesn’t explain why my Dad has such severe cognitive symptoms to plants (and has seemingly had them since he was a child), but it does explain my arthritis as a kid.

There are obviously multiple problems going on, which isn’t what I was hoping for. One step at a time though. Candida is gone, C. Diff is probably gone, that’s two down. One more to go? Two more? Three more?

It definitely surprised me. I was driving back from my last FMT treatment in the Bahamas last week when I received the results. My best friend came with me to help take care of Scarlett while I was there and I asked her to look at the results. When she said, “It says you’re positive for something called B. burgdorferi.” I had a bit of a double take. Well, more like a wave of horror washed over me. “Not Lyme. That’s so difficult to get rid of. Please, not Lyme.”

I stopped by the grocery store to grab ribs and we didn’t really talk about it. I just kept looking at the results. On the way out I drove over a curb. I got back to the AirBnB and called my parents to tell them. They were pretty silent about it too.

Then I went on a research spree. That lasted until the following morning. I woke up super early and went down a rabbit hole of, “it’s very difficult to test for, here are a bunch of fringe treatments that seem to randomly work, diet works sometimes, heating up your body works, going to see some dude in Germany works, antibiotics work (except for the 20 percent of people that then test negative for the bacteria and still have symptoms!!!). AWESOME. It’s basically the fringe-freak disease (no hate to fellow Lyme sufferers). GREAT. Plus I’ve probably had it since I was 2 and started showing symptoms of arthritis. That’s 25 years. And the longer you have it the more difficult it is to get rid of. Or is it good news? Does this mean I could fix it? AHHHHH. So then I had a meltdown. Luckily my friend was there. It was a short meltdown. Maybe 20 seconds.

Then I was over it.

So it was about 15 hours of, “Oh nooooo, now I have to spend the next forever researching a new problem!!! I don’t want to learn about Lyme, I don’t care about Lyme Disease. Why me!? This explains everything, especially the arthritis and chronic fatigue but then why did dad have symptoms since he was a kid too? Why do all of my issues have to be so complicated and fringe-sciencey!!!”

Then I cried for 20 seconds and then decided I was over it.

The Dad emailed me about how these tests aren’t reliable according to the Canadian medical system. Which is why I didn’t test positive as a child. Which is ridiculous. How else do you end up with bacterial plasmid DNA in your blood if you’re not positive?! Medical systems man. They anger me.

Game plan: Do exactly what I’ve already been doing and follow the old plan before I found out about these results. One thing at a time here.

I did the FMT treatment in the Bahamas, and I’ll let everyone know on the next post what my game plan is. It’s not to freak out and research these stupid little spiral bacteria obsessively for the next God knows how long though and try 18 different treatments at once. Ain’t nobody got time for that. Especially considering this all beef diet obviously works for Lyme, (and basically, everything else it seems). I can only follow one lead at a time and I’m going to give this FMT thing a real shot before I try the next crazy thing. I think.

I guess I’m not THAT surprised. I knew there was something going on that was “something like Lyme”.

Keep at it boys and girls, it’s a wild ride out there. Update on FMT coming soon.

PEACE.

Posted in FAQ

16 thoughts on “Lyme. Are You Kidding Me?

  1. Your last game plan improved things until now, hope it’ll continue to bring you good results and that you won’t need more drastic steps to be cured (maybe withouth knowing you already found the right cure before knowing exactly what made you ill) !
    Is your daughter safe (placental transmission) ?

  2. It’s a difficult situation. I just watched your recent video and was very intrigued to hear about your positive results. Very, very intrigued. I hope that you’re truly able to get those vivid emotions, that passion for life through this FMT you’re doing right now.

    There’s a lot of us on this road to health and it surely isn’t easy to find the right path xD. The good thing is that you, me and countless others are at least feeling a lot better eating like this so that we can live our lives somewhat decently and actually have the enthusiasm and strength to keep on searching.

    Thanks Mikhaila yet again for transforming my and many others’ lives.

  3. I am sure that Buzzfeed will post click bait like “Jordon Peterson’s Daughter eats….” (shaking my head) I have friends who have gone through the FMT and it helped them. I hope it helps you. Keep up the great work.

  4. Hang in there dear one, you are helping so many on here with your experiences. Well I guess you know that but it sucks when you are going through all your frustrations too. I hate medical tests! MANY years ago when I was going to be a seaman, I had to get a medical check-up in Long Beach, CA to get my Seaman card as per Coast Guard regulations. Not SEMEN I know what you are thinking you naughty girl! But anyway I did the drill and this was on a Friday afternoon. The “Doctor” said everything looks fine except the spots in your lungs. WHAT! I have spots on my lungs? He said we will send this info back for further analysis and we will discuss this more on Monday, I, of course was a wreck all weekend. When I did go back he said, “Well everything is ok.” Uh, what about the spots on my lungs?” His response was, “sorry
    mixed up your file with someone else’s. That shit does happen, I know it was not the Mayo clinic, but it sure fucked with me for a few days. I know your testing is better quality, but don’t, in my opinion rely on testing to tell you how healthy you are, you know how healthy you are. You, out of your kindness are reporting to us for our our concerns and I think you are awesome for this, thanks beautiful one!

  5. Hi, there is a book called “Lets Play Doctor” by JD Wallach, BS, DVM, ND and Ma Lan, MD, MS, first published in 1989. I was made aware of it years ago, because of my own belief in my body’s natural ability to heal. The book gives a “history” on how we got our orthodox medical treatment in the United States and bona-fide nutritional treatments for most all diseases. When you know this information, you have the confidence to ask for good medical care. I would highly recommend you and anyone reading this, get this book, about $10. When you have true knowledge about a disease plus a nutritional way of treatment to try first, before drugs, its definitely worth it. In some cases, you will still need to partner with a medical doctor or specialist, to rule in or rule out what is going on with you. As you have experienced, this process of elimination. But, had you had this book, you may not have had to endure this. This is why I wanted you and your readers to know about the book. One of their premises is, animals, (Dr Wallach is a veterinarian) don’t have Blue Cross and Blue Shield insurance, and mostly treat animals nutritionally!

    Here is what is shared from the book on page 258 regarding Lyme Disease (LD, Lyme arthritis): is a spirochete bacterial disease that was first described in 1975, in Lyme, Connecticut, thus the name. Three to 32 days after being bitten by an infected tick a skin lesion known as an ECM (erythema chronicum migrans) will appear on the thigh, buttock or axilla. The lesion expands to a diameter of 5 cm, the lesion feels hot to the touch. There will be recurrent attacks of arthritis, fatigue, chills, fever, stiff neck, sore muscles, nausea and vomiting. Heart disease in the form of cardiomegaly and AV-block occur
    in 8 % of patients. Diagnosis of Lyme disease requires a high degree of awareness of the disease. Lyme disease occurs most often in children who play out in the grass or deep woods, or those who have a dog that goes out into the woods and
    brings home the Ixodes dammini tick. The disease occurs in clumps along the northeastern coast of the United States, Wisconsin, California and Oregon. Patients may initially be misdiagnosed as rheumatoid arthritis, WBCs are elevated at 25,000, special blood tests are required for specific diagnosis.

    Treatment of Lyme Disease requires the use of tetracycline at 250-500mg q.i.d. (4 times a day) for 20 days. In children
    where teeth are discolored by tetracyclines, penicillin can be used at 20 million u/day IV divided doses.

    I have 3 children and lived in Kansas with visits to my mother’s lake house up in the North Georgia woods near Lake Hartwell.
    My kids played in the woods and with our collie dogs. All had their tick experiences, with finding ticks on them! We had to shave the hair off our collie dog to discover several ticks embedded in her skin. It is a shock, but probably more common than most people realize. You remove the tick and hope nothing more comes about. Hopefully, this information may help to guide you going forward.

  6. Hi Mikhaila, I just want to give you a heads up about Mast Cell Activation Disorder/Syndrome. I have been reading your posts and listening to your interviews for a while and each time you talk about symptoms etc I think, wow she has a mast cell problem! I have Systemic Mastocytosis and the symptoms are wide ranging and unpredictable such as yours. It took four years of testing before I was diagnosed with SM and the Pathologist in Toronto couldn’t give a conclusive diagnosis my file had to be sent to the Mayo Clinic to be diagnosed. Some autoimmune diseases are symptomatic of mast cell degranulation. It is better to get your info from this doctor who has done the most research on Mast Cell Disorder, in my opinion. Here is his website with info on him and then click on recent publications for a list of info on various diseases/disorders. http://www.mastcellmaster.com/

Leave a Reply